Hosted by Children’s Tumor Foundation Europe and organized by the Children’s Tumor Foundation and NF Europe, the 2024 Global NF Conference serves as the primary annual gathering for the NF research and clinical communities. Focused on enhancing drug development and patient outcomes for individuals with neurofibromatosis and schwannomatosis, this global event brings together over 1,000 participants from various scientific fields. It plays a crucial role in advancing basic, translational, and clinical research in NF, offering a platform to interact with experienced professionals and newcomers in the NF domain.
2024 Global NF Conference
Brussels, Belgium
June 20-25, 2024
Find here all info for registration for the Conference as well as for the patient day on 21/6/2024:
https://web.cvent.com/event/b5e8d13b-721d-45f2-b5a0-0ff506ddd080/summary
NF Patients United representatives will attend the conference alongside its members. We look forward to sharing updates on the conversations and discussions post-event.
Patient Day
We are looking forward to the lectures and discussions on patients day. This day for patients and lay groups will be held on Friday, 21st June. Representatives from our European member organisations will join the talks and discussions there.
NFPU meeting – supporting patients
NF Patients United, in collaboration with Alexion, will have a roundtable discussion at the Global NF Congress. It will be focused on sharing experiences and perspectives in supporting individuals with NF, NF1-PN patients and families transitioning young adults to adulthood. The event aims to shed light on the challenges faced within the healthcare system, particularly in the context of switching physicians and seeking referrals to specialized centers of excellence.
Meet us at our booth at the conference
Additionally, we invite you to visit the NF Patients United stand during the congress. Our aim is to connect with peer organizations who are not yet members of NF Patients United. This presents an excellent opportunity for us to introduce ourselves, exchange insights, and foster a deeper understanding of each other’s work.
Contact us if you are interested in meeting in Brussels:
info@nf-patients.eu
Sponsor of the NFPU meeting:
