May is worldwide Neurofibromatosis awareness month!
This month we will spread the word about NF. You can learn what it means for patients and their families to live with this conditions having a huge variety of symptoms.
Join us in spreading awareness and making Neurofibromatosis Month a memorable one. Not sure how to get involved? It’s easy!
#ofcourse
Follow these simple steps to get involved:
- Create a video saying:
“I have NF1/NF2/Schwannomatosis. Of course I have …..
[now you say a symptom / mental health issue or other things related to your NF ]”
If you do not have NF yourself, you can also speak for someone else, like your friend, your child, your parent or other:
“My son has NF1 and that means that he has regular MRI scans at hospital.”
OR
“My best friend has NF2 – of course he has lots of hospital appointments. “
You can make the video together with this person, show a picture/video of this person or other.
Be creative! - Share it on social media with these hashtags:
#NFPatientsUnited #NFAwareness #ofcourse #neurofibromatosis - Link to a channel where there more information about this symptom can be found, like our website or your organisations channels.
- Then best tag three friends in your post and encourage them to participate too! 🙂
- Upload your video throughout May on social media!
You can also support NF patients with following the campaign on social media and get involved by sharing and commenting. Show your concern with a thumbs up 👍🏻 or ❤️
Thank you!
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