Magazine

In terms of mental health, we talked with Gregoris, a father of a blind son with NF1. He told us what it’s like when your child is losing his eyesight and how he copes with it. We also spoke with Femke van Krimpen, a Dutch psychologist who works in an expertise center for blind children. She gave us some more advice on how to cope with vision loss.

Of course, we also look for people with Neurofibromatosis who inspire us. This time, our Hero of the Month is Rubén. Despite having NF1 and growing up with a benign tumour on his right eye, the Spanish boy lives his life to the fullest and is currently participating in the Erasmus program in Belgium. He told us about his story with NF1 and how to deal with challenging days.

And lastly, there is also our Kids Corner for the young ones living with NF. There is a book recommendation for children, which explains Neurofibromatosis in simple words. And, as Halloween is around the corner, we have some spooky games and DIYs for the young ones.

Lastly, I want to thank you again for supporting NF Patients United and this Online Magazine. If you like our work, we would be pleased if you gave us a donation. Every small amount counts, so we can have more resources to better support people battling with all types of NF and continue to make this online magazine better! Also, we are always happy about feedback, so feel free to write us!