INDEX
Magazine
Global Network of Neurofibromatosis Patient Organisations
Dear readers,
It’s my great pleasure to introduce the final edition of the NFPU Online Magazine in the year 2024. Together with other member organizations in Europe, we worked on publishing this magazine just before the festive Christmas season. Our primary focus this time is on NF-related central nervous system manifestations, particularly low-grade gliomas (brain tumors) and their treatment.
We had the privilege of speaking with Dr. Michael J. Fisher, a neuro-oncologist at the Children’s Hospital of Philadelphia. He shared insights on managing benign brain tumors, identifying the most common types, and discussing effective treatment methods.
On the topic of mental health, we interviewed Austrian clinical psychologist Lena Fichtinger from the Medical University of Vienna. With her expertise in working with people diagnosed with Autism, she gives helpful advice on managing neurocognitive issues. Mikkel from Denmark, who is affected by NF1 and was diagnosed with Autism, also tells us what living with Autism looks like for him.
Of course, we also look for people with Neurofibromatosis who inspire us. This time, our Hero of the Month is Mason. He has NF1 and was diagnosed with Autism but always remains positive and brings joy to his mother every single day.
Finally, I want to thank you for supporting NF Patients United and this online magazine. If you enjoy our work, we would greatly appreciate your donations. Every small amount counts, so we can have more resources to better support people battling with all types of NF and continue to make this online magazine better!
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