Educating young NF Ambassadors
The NF Academy is a program to educate young people to become ambassador for the rare disease Neurofibromatosis. In this one week training there are lessons on medical topics for NF, mental health and essentials for the work as an ambassador for other patients. This event is conducted together with one our NF member organisations in Europe.
The NF Academy 2023 in Lisbon
In summer 2023 NF Patients United launched its academy for young adults affected by Neurofibromatosis in Lisbon. It was an educational program, a mixture of joint discussions and individual work. Young patients and siblings of patients, learnt about NF1, NF2 and Schwannomatosis, patient advocacy, patient involvement in research and how to deal with the challenges that they are facing.
Now these NF ambassadors are trained to work with patient organizations on a national level and with NFPU on a European level, and that way represent the interests of young NF patients.
One of the ambassadors – Chris from Greece – put together a video. Participants from the 2023 NF academy talk about what the training was about and what they learned there. Watch his video here:
Next NF ambassador training
If you are interested to participate in a future editon of a young rare disease ambassador training, please let us know! Just send us a short email so that we can inform you early on any new events! Please email us: info@nf-patients.eu
The NF Patients Young Academy 2023 was conducted by NF Patients United together with the Portuguese NF patient organisation APNF
The NF patients academy 2023 was kindly supported by:
Watch this video from our previous NF Academy:
Support the NF Academy
Help us to support the NF Academy for more young ambassadors. Our last years participants want to secure places for more young NF Patients. Please support the go fund me campaign:
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