Building Bridges: Educating Young Advocates Living with NF
The NF Academy is a program to educate young people to become ambassador for the rare disease Neurofibromatosis. In this one week training there are lessons on medical topics for NF, mental health and essentials for the work as an ambassador for other patients. This event is conducted together with one our NF member organisations in Europe.
The NF Academy 2024 in Rotterdam
In summer 2024 NF Patients United launched its academy for young adults affected by Neurofibromatosis in Rotterdam. It was an educational program, a mixture of joint discussions and individual work. Young patients and siblings of patients, learnd about NF1, NF2 and Schwannomatosis, patient advocacy, patient involvement in research and how to deal with the challenges that they are facing.
ERASMUS medical center 
Group of participants 
Participants of the NF Academy in Rotterdam 
Amit Ghose – Inspirational speaker & role model 
Lecture with Andre Rietman and Sandra van Abeelen 
Lecture at the ERASMUS university 
Laboratories genetics at the ERASMUS university 
Evening at the beach 
Courney and Daan 
Certificates for the NF ambassadors 2024
Now these NF ambassadors are trained to work with patient organizations on a national level and with NFPU on a European level, and that way represent the interests of young NF patients.
Participants from the 2024 NF academy talk about what the training was about and what they learned there.
Watch their video here:
Next NF ambassador training
If you are interested to participate in a future editon of a young rare disease ambassador training, please let us know! Just send us a short email so that we can inform you early on any new events. We are happy to hear from you.
Email us: info@nf-patients.eu
Support the NF Academy
We are already planning the next edition of the NF Academy for this summer. Support our mission with your donation to help educate young patients and family members on managing the disease and to raise public awareness about the condition:
The NF Patients Young Academy 2024 was conducted by NF Patients United together with the Dutch NF patient organisation NFVN
The NF patients academy 2024 was kindly supported by:
