NF community

Save the Date: NF Best Practices Summit

best practice summit 2025 for patients and caregivers

Join us for the NF Best Practices Summit organised by NF Patients United – an interactive online event bringing together patients, researchers, and academics from Europe and beyond to explore the latest developments in neurofibromatosis and share best practices.

📅 Date: 3 May 2025
🕤 Time: 9:30 – 15:00 CET
💻 Format: Online (Zoom)
👥 Who can attend? Anyone interested in NF and rare diseases

📢 Save the Date 🗓️

The agenda for the NF best practices summit is coming soon, but we encourage you to secure your spot now by registering in advance:

Don’t miss this opportunity to connect, learn, and contribute to the conversation. We look forward to seeing you there!